[misskira]

Originally Posted by Nerissa I work in the schools and have seen the results to a kid that didn't get tested and/or parents didn't follow the rules so to speak and it is sad. I would do the test

yes yes yes.
I'm a special education teacher. I declined the eye goop, I declined a hospital bath. I understand declining the vitamin k shot. The heel prick was really uncomfortable for my first baby, and my second nursed right through it. But after seeing the results of a metabolic disorder, I personally wouldn't ever decline the pku. My student had mental retardation from the food she ate before they knew what was wrong. She then lived with a very limited diet for years. Eventually she had a liver transplant and can now eat normally, however the cognitive delay is for life.