[JennTheMomma]

Originally Posted by jackyl08 I often don't understand why people decline so much testing, but declining the PKU/metabolic testing just seems crazy. I simply don't get it. At our hospital, they do it 48hrs after birth(so right before discharge), then give you the envelope to take to the ped at 2wks. I would never, ever think to decline it. I swear, people just decline stuff because it's a "test" and oh noes, not a test!

I have had friends decline because they get tested for the gene themselves instead of testing baby. PKU is rare http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0002150/