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Old 07-15-2011, 09:37 PM   #21
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Re: UPDATE 7/13/11: Please keep my baby girl in your prayers

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Originally Posted by kittycorona View Post
Wow, you must be psychic!!! The skin condition (EB) that this little boy has is actually the condition that the doctors believe Shaelynn is suffering from also. I'm praying everyday that they are wrong but if she does end up being diagnosed with EB, it will be the mildest form that they have ever seen. Thank you for the link

I pray that it's not that at all, just a fluke thing happening that resolves. It just definitely struck me when you mentioned it, how similar it sounded to Jonah - although his is quite severe. I do hope and pray that if she does have EB, it's one of the vary mild forms.
I wonder if EB, if she does have it, could have caused her early arrival?

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Old 07-16-2011, 03:43 PM   #22
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Re: UPDATE 7/13/11: Please keep my baby girl in your prayers

Ah, I remember the NICU days very well. My heart goes out to you, mama. Sending love and hugs your way. You have a very strong and special little one on your hands!
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Old 07-16-2011, 10:42 PM   #23
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Re: UPDATE 7/13/11: Please keep my baby girl in your prayers

god works in amazing ways
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Old 07-16-2011, 11:04 PM   #24
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Re: UPDATE 7/13/11: Please keep my baby girl in your prayers

Praying for her and for your family.
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Old 07-17-2011, 06:00 AM   #25
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I am praying not only for strength for your baby girl and family, but also for healing in your heart so that you can heal from the unnecessary guilt that you've been carrying. I'm so glad to hear that she's doing so well!

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Old 07-17-2011, 09:01 PM   #26
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Re: UPDATE 7/13/11: Please keep my baby girl in your prayers

Wow, reading your post brought back memories of my guy in there and what he went through..all of the same breathing issues with the desats, as well as the hole in the heart, medication not working, and closing up on its own. It's amazing how when you have a premie you never take anything for granted and celebrate the tiny advances and progressions. I'm so happy that she's doing well and hope she will continue to do so!
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