Diaper Swappers

erin_c_odonnell · 01-30-2013, 07:22 AM

Agree with all above. The signing too can't hurt- even if she ends up being hearing with some other issue (not sure what though since it sounds like a classic case of either bilateral hearing loss or at least loss in one ear like you said). The signing can really help her language development either way. I hope you find out what it is- keep us posted!

MrsCrafty · 01-30-2013, 07:35 AM

Quote:

Originally Posted by mibarra

If you are concerned you will want an Auditory Brainstem Response (ABR) from an ENT. If she does have hearing loss then you'll also probably want an Audiologist and to begin SLP services. That's about the age my DD was identified. Please feel free to PM with any questions!!

I agree with this. My DS is hard of hearing, and after a few booth tests he was sedated for an ABR, which is the most accurate. You'll definitely want to see an ENT.
My DS started out with just a unilateral loss, he has an inner ear abnormality(EVA which was DX through a CT scan) in both ears though and has been losing hearing, so now it is bilateral.
I hope you get some answers quickly for your LO, feel free to pm me as well

faithfulorangekids · 01-30-2013, 09:14 AM

Get an ABR asap.It will tell you what's going on.

Start on giving her language and communication. Sign language will help.

mom1mg · 01-30-2013, 04:28 PM

Thanks everyone. We are on the road. I have a new SLP meeting her tomorrow with her early intervention worker. (IDP for those Canadian mamas). We have a ped appointment on the 12th (peds are specialists here) and I will ask to be sent for the ABR. Depending on what the ped thinks I may try to self refer to the early hearing loss program. I think generally parents should have a better idea of what kind of loss hearing loss they are dealing with before being referred but it isn't going to hurt to get a jump on the paperwork and potential waitlist. Thanks everyone SO MUCH. I'm having a really hard time with this - I lost my cell phone charger and ended up crying in my driveway for 30 minutes - lol. It isn't because of the hearing issues though, it's because we've BTDT having a special needs child and it is NEVER as simple as it seems like it is going to be. I already have kids in an average of 10 hours of therapy A WEEK and I just don't know how I am going to manage another new team

mibarra · 01-30-2013, 05:22 PM

Quote:

Originally Posted by mom1mg

Thanks everyone. We are on the road. I have a new SLP meeting her tomorrow with her early intervention worker. (IDP for those Canadian mamas). We have a ped appointment on the 12th (peds are specialists here) and I will ask to be sent for the ABR. Depending on what the ped thinks I may try to self refer to the early hearing loss program. I think generally parents should have a better idea of what kind of loss hearing loss they are dealing with before being referred but it isn't going to hurt to get a jump on the paperwork and potential waitlist. Thanks everyone SO MUCH. I'm having a really hard time with this - I lost my cell phone charger and ended up crying in my driveway for 30 minutes - lol. It isn't because of the hearing issues though, it's because we've BTDT having a special needs child and it is NEVER as simple as it seems like it is going to be. I already have kids in an average of 10 hours of therapy A WEEK and I just don't know how I am going to manage another new team

Oh mama, I know! But the good news is you've dealt with the system generally so you have a leg up there! Good luck! Feel free to PM if you want to know anything else about my DD and our journey. Seeing how much progress she's made I'm so happy we jumped on it early!

mom1mg · 01-30-2013, 10:36 PM

Thank you - it's been an AWFUL day. We will see what tomorrow brings with the new SLP. I think part of the problem for me is knowing the system already. I think my biggest fear isn't that something is "wrong" with my DD but just how am I going to find the time to navigate these waters again.

isabelsmummy · 01-30-2013, 11:25 PM

DS ate my post...
Anyway, the short version is that I think you'll find hearing loss much easier to navigate than autism. It has more of a protocol and once you are in the BC Hearing Program things will likely just tick along.

Here is my favourite video ever. It's a neighbour girls getting her hearing aids as a preschooler. She can hear somewhat but was missing a lot of sounds (which is why her speech is 'off' in the video). She does great now and her speech is perfect. When she's in large groups she gives the teacher/guide leader an amplifier so we can talk right into her hearing aids (a tool I wish I had for ALL kids!!!)

http://www.youtube.com/watch?v=qDaLX...layer_embedded

mom1mg · 02-24-2013, 12:29 AM

forgot to bump for update - lol

mibarra · 02-24-2013, 08:58 AM

Sounds like maybe Apraxia from your description. The hearing thing is very strange, but glad there's one less hurdle for you!

01-30-2013, 07:22 AM	#11
erin_c_odonnell Registered Users Join Date: Jul 2008 Location: North Carolina Posts: 2,697 Ratings: 44 Feedback: 100% My Mood:	Re: I need some help - DD may have hearing loss Agree with all above. The signing too can't hurt- even if she ends up being hearing with some other issue (not sure what though since it sounds like a classic case of either bilateral hearing loss or at least loss in one ear like you said). The signing can really help her language development either way. I hope you find out what it is- keep us posted! __________________ Erin- Helpmeet to David, Deaf. Reformed Christian. Homeschooling. SAHM to 5 on earth, 3 in eternity. ISO: DESPERATELY want size 10 Ladder Hill Design bed wetting pants!!!

01-30-2013, 09:14 AM	#13
faithfulorangekids Registered Users Join Date: Dec 2010 Location: Laurel, MD Posts: 424 Ratings: 10 Feedback: 100% My Mood:	Get an ABR asap.It will tell you what's going on. Start on giving her language and communication. Sign language will help. __________________ Tiffany, deaf that uses Cued Speech/ASL, babywearing, cloth diapering/EC inspired, BLW with all of my nanny kids, ISO- WOOL yarn and crocheted wool patterns! Expecting my first lil turkey this coming November!!

01-30-2013, 04:28 PM	#14
mom1mg Registered Users Join Date: Aug 2009 Location: British Columbia Posts: 3,782 Ratings: 18 Feedback: 100% My Mood:	Re: I need some help - DD may have hearing loss Thanks everyone. We are on the road. I have a new SLP meeting her tomorrow with her early intervention worker. (IDP for those Canadian mamas). We have a ped appointment on the 12th (peds are specialists here) and I will ask to be sent for the ABR. Depending on what the ped thinks I may try to self refer to the early hearing loss program. I think generally parents should have a better idea of what kind of loss hearing loss they are dealing with before being referred but it isn't going to hurt to get a jump on the paperwork and potential waitlist. Thanks everyone SO MUCH. I'm having a really hard time with this - I lost my cell phone charger and ended up crying in my driveway for 30 minutes - lol. It isn't because of the hearing issues though, it's because we've BTDT having a special needs child and it is NEVER as simple as it seems like it is going to be. I already have kids in an average of 10 hours of therapy A WEEK and I just don't know how I am going to manage another new team __________________ Wife to the man I adore and Mama to DS10, DS9, DS3, DD2, and DD1 SAH, Homeschooling, Hobby Farming, SNs SUPER MAMA - Melissa

01-30-2013, 10:36 PM	#16
mom1mg Registered Users Join Date: Aug 2009 Location: British Columbia Posts: 3,782 Ratings: 18 Feedback: 100% My Mood:	Re: I need some help - DD may have hearing loss Thank you - it's been an AWFUL day. We will see what tomorrow brings with the new SLP. I think part of the problem for me is knowing the system already. I think my biggest fear isn't that something is "wrong" with my DD but just how am I going to find the time to navigate these waters again. __________________ Wife to the man I adore and Mama to DS10, DS9, DS3, DD2, and DD1 SAH, Homeschooling, Hobby Farming, SNs SUPER MAMA - Melissa

01-30-2013, 11:25 PM	#17
isabelsmummy Registered Users Join Date: Sep 2009 Location: Vancouver, BC Posts: 2,620 Ratings: 2 Feedback: 100%	Re: I need some help - DD may have hearing loss DS ate my post... Anyway, the short version is that I think you'll find hearing loss much easier to navigate than autism. It has more of a protocol and once you are in the BC Hearing Program things will likely just tick along. Here is my favourite video ever. It's a neighbour girls getting her hearing aids as a preschooler. She can hear somewhat but was missing a lot of sounds (which is why her speech is 'off' in the video). She does great now and her speech is perfect. When she's in large groups she gives the teacher/guide leader an amplifier so we can talk right into her hearing aids (a tool I wish I had for ALL kids!!!) http://www.youtube.com/watch?v=qDaLX...layer_embedded