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Old 04-15-2013, 07:41 PM   #1
Suzi
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Anyone have experience with Celiac?

I had been having tummy problems for a few months. The stomach cramps and other details I will leave out got horrible. I have a cousin with celiac and another that is gluten intolerant. I have only 5 cousins. So I went off gluten and after a couple of weeks my tummy finally settled down.

So, should I go back on gluten so I can get tested? How long do you have to be back on gluten? I know that if I don't get tested I will probably go back to sneaking gluten

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Old 04-15-2013, 08:45 PM   #2
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Could be some Irritable Bowel Syndrome. Much more common. Except you do have glutwn intolerance in your family, so a distinct possibility.

IBS is definitely affected by what you eat. Tons of things you wouldn't expect even.

I've only known one person with celiac and she was so super sick. Rail thin because her body wasn't processing the food and they hadn't come up with a diagnosis. I know it doesn't have to be that way for everyone. But I'd wonder about IBS first. Especially common in women.
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Old 04-15-2013, 09:13 PM   #3
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I'd get tested ASAP. If its Celiac, you really need to know because you will need to be much, much more careful. I would work with a GI and not just your regular dr. Call tomorrow and get an appt and ask for their recommendations for how long they want you on gluten before they run any tests.

My DD has celiac, diagnosed at 18 months, it's no small matter and you really need to know if you have it, especially since it runs in the family.
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Old 04-15-2013, 11:47 PM   #4
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I would definitely get tested. Having family members with the diagnosis definitely raises your risk. It took me years to get diagnosed, but I was so happy to finally feel better that I rarely have the desire to cheat on my diet (and never have in the 3 yrs since my diagnosis.) Celiac is often misdiagnosed as IBS. The danger in not getting a diagnosis is that undiagnosed/non-compliant Celiacs are at a much greater risk for things such as osteoporosis, lymphoma, and several other serious health concerns. The good news is that once diagnosed, changing your diet will make you feel loads better! Find yourself a good GI, get tested, and follow their recommendations for routine care. I hope you feel better soon!
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Old 04-16-2013, 05:10 AM   #5
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Re: Anyone have experience with Celiac?

There are home blood tests that you can do. I believe my naturopath said to be on gluten for 2 weeks and then take the test. It's like a pregnancy test only with a drop of blood. Maybe try that first and then if you get a positive go into the doctor for further testing.
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Old 04-16-2013, 06:06 AM   #6
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Re: Anyone have experience with Celiac?

I would get tested. You should test for celiac, but also maybe think about testing for a wheat allergy. If both the tests come back negative, you will just have to see how you feel. If you feel better without gluten, it could just be an intolerance which there is no test for.
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