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Old 01-06-2013, 01:45 PM   #1
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My son just got this diagnosis.

He's 6.5 months old and 14 lbs. 6 oz. (6 lbs 11 oz at birth, born by c/s at 37/38 weeks) he's only gained 1 oz in the last month. We adopted him at birth and he's been exclusively breasted. All signs point to him consuming enough, he's just not growing. We've switched to bottle feeding with breast milk fortified with formula to make it 24 calories an ounce. He is having a scope done next week of his upper GI tract to look for abnormalities or signs of allergy. He spits up a lot, all the time. He's on Prevacid, but it doesn't seem to help. We've tried elimination diets for me as we'll as chiropractic with no success.

He's not a fan of the bottle and seems to be consuming even less than when he was nursing. We are force feeding him practically and we are still below the minimum recommended ounces for his age per day.

I'm just so sad about this. I've never dealt with this in a little baby. I don't even know what the next steps will be if these fortified bottles don't help him gain. He's seeing a GI specialist at a top children's hospital, so I think we're in good hands.

I know there has to be some BTDT moms here. I could use any advice/encouragement you have.

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Old 01-06-2013, 01:51 PM   #2
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All my kids got that diagnosis because I of poor weight gain (10 pounds at 4 months). Is your LO heathy otherwise? If so I wouldn't worry about the weight gain. Some are just small!

Does he look malnourished? Does he have sunken eyes?

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Old 01-06-2013, 01:52 PM   #3
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Old 01-06-2013, 01:55 PM   #4
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Re: Failure to Thrive

Oh mama. I am so sorry to hear that. Super stressful. Poppy was 9lb 10oz at birth and now at 2yo is barely 25lbs. I could go back and look at exact weights but she was a very slow gainer and by the time she was eating better she was in that toddler stage where weight slows down dramatically. I think the fact that you are seeing a GI doctor is super important. Poppy's was a result of severe reflux which she just stopped being medicated for at 23+ months. She had a barium swallow and a swallow study at 2mo. Can I ask how his medication is being prepared and dosed? Poppy was on Zantac and then the Prevacid was added but it was not being prepared correctly or dosed correctly because our pedi was prescribing. Once that was corrected we saw a serious improvement.
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Old 01-06-2013, 01:57 PM   #5
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Re: Failure to Thrive

My son had a similiar thing around 9 months. We kept breastfeeding but upped his food intake with fatty foods like avocado in everything! Have you tried him on food? My dr. was very worried but let me try food before adding formula (I nursed exclusively) It worked for us. If you are concerned try going to nursing on demand and contacting a lactation consultant, that may help!
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Old 01-06-2013, 02:03 PM   #6
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Originally Posted by MDever
Oh mama. I am so sorry to hear that. Super stressful. Poppy was 9lb 10oz at birth and now at 2yo is barely 25lbs. I could go back and look at exact weights but she was a very slow gainer and by the time she was eating better she was in that toddler stage where weight slows down dramatically. I think the fact that you are seeing a GI doctor is super important. Poppy's was a result of severe reflux which she just stopped being medicated for at 23+ months. She had a barium swallow and a swallow study at 2mo. Can I ask how his medication is being prepared and dosed? Poppy was on Zantac and then the Prevacid was added but it was not being prepared correctly or dosed correctly because our pedi was prescribing. Once that was corrected we saw a serious improvement.
He receives 3 mL 2 x a day. It's a compounded liquid that the pharmacy at the children's hospital makes for him.

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Originally Posted by s2grace
My son had a similiar thing around 9 months. We kept breastfeeding but upped his food intake with fatty foods like avocado in everything! Have you tried him on food? My dr. was very worried but let me try food before adding formula (I nursed exclusively) It worked for us. If you are concerned try going to nursing on demand and contacting a lactation consultant, that may help!
He's been fed on demand since birth. He started solid food and will only eat a very small quantity. We are adding olive oil to puréed foods instead of water or milk to thin them out a little bit for him. Even with that he's not gaining.

He's not hardly been gaining at all of a few months now. She's (dr) let us try lots of things before moving to supplementing. She's very pro-breast feeding and wanted him to be exclusively breastfed as long as possible. We just can't let him continue to not gain.
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Old 01-06-2013, 02:08 PM   #7
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Originally Posted by TinaDeanette
All my kids got that diagnosis because I of poor weight gain (10 pounds at 4 months). Is your LO heathy otherwise? If so I wouldn't worry about the weight gain. Some are just small!

Does he look malnourished? Does he have sunken eyes?
He hasn't always been healthy, but is now. He's the little guy that was hospitalized for a diaper rash turned crazy staph infection at 2 months old. I posted about it back when it happened. He lost weight while hospitalized and has never gotten back on a curve. At 3 months he weighed 12 lbs. His only other health issues are the reflux and eczema.
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Old 01-06-2013, 02:15 PM   #8
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Re: Failure to Thrive

I would think that the pharmacy there would be doing it correctly but ours didn't. The prevacid needs to be disolved in a bicarb solution for the best continuity of dosing and ours was using sterile water. This meant that her medication only lasted 15 days and that she was not always getting the appropriate dose. Also, prevacid is supposed to be dosed 30 minutes before eating. The doctor explained that it needed to be in their system. Poppy was a whole new kids on once per day 30 minutes before eating. I think the scope is certainly worth considering so that you can see if there are eosinophils present that indicate an allergy. Are they planning to do the PH monitor too?
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Old 01-06-2013, 02:16 PM   #9
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Re: Failure to Thrive

Hugs. my hubbys cousin tried all the normal things with hers. Come to find out I guess from hear say it was baby stomache all folded over & now doing fine. Did get better though by cutting down on dairy but from what I know of his cousin she's on the go a lot & nurse at a place & all. Deitician apparently also said certain things Were ok to eat no dairy& all but if one read label it said otherwise......so hope you find out & that its not surgery to fix folded stomach or anything....
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Old 01-06-2013, 02:18 PM   #10
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On my phone but will write more later. DS stopped taking a bottle at 4 months. He got an NG which was awful, and then at 7 months, we begged for a G tube. It is super easy once you get the routine down. We are now at only 8 oz in the tube and 25 oz drunk orally, down from 32 oz in the tube and nothing orally at 18 months. It is all aversion--he has no physical issues.

If you saw him now at 3.5, you'd never know he had a tube. He's 36 pounds!

Get a good developmental ped, a good nutritionist, a good OT, and you should see some progress. I've found Taft out dev. Ped was more effective than our GI at managing DS's reflux.

If he has eczema, have you tried a hypoallergenic formula to see if it is being caused by a sensitivity?
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