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Old 02-21-2013, 01:49 PM   #131
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Re: anyone decline the PKU?

hmm would be hard to catch in a baby since they eat about every hour(bf)
wonder how if affects adults?


A baby with a fatty acid oxidation disorder
has trouble using fat for energy. This is
because a special enzyme that converts fat
to energy is either missing or or not working
correctly. There are several different types
of fatty acid oxidation disorders. A baby with
a fatty acid oxidation disorder cannot go
without eating for very long. If this happens,
a medical crisis could occur

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Old 02-21-2013, 02:35 PM   #132
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Re: anyone decline the PKU?

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Originally Posted by mommyshanti View Post
sorry your dealing with this. like op said i have no idea what the disorder is but hope it is fixable since you caught soo early. nteresting though as i have never heard about one test being more relialbe for one thing and testing later for other disorders. always been told the other 2nd test was more accurate.
no cure as of yet.

Quote:
Originally Posted by mommyshanti View Post
hmm would be hard to catch in a baby since they eat about every hour(bf)
wonder how if affects adults?


A baby with a fatty acid oxidation disorder
has trouble using fat for energy. This is
because a special enzyme that converts fat
to energy is either missing or or not working
correctly. There are several different types
of fatty acid oxidation disorders. A baby with
a fatty acid oxidation disorder cannot go
without eating for very long. If this happens,
a medical crisis could occur
the problem with FOD babies that usually is the issue is an illness where they eat less, vomit etc, they can't recover like a normal child.

Adults have FODS and have to avoid some different foods and fasting. easier for an adult to force feed themselves than getting a baby/toddler/child to.
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Old 02-21-2013, 04:36 PM   #133
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no cure as of yet.

the problem with FOD babies that usually is the issue is an illness where they eat less, vomit etc, they can't recover like a normal child.

Adults have FODS and have to avoid some different foods and fasting. easier for an adult to force feed themselves than getting a baby/toddler/child to.
Yeah, that seems to be the hardest part... Kids won't eat or drink if they don't want to & will have problems because of this.
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Old 02-21-2013, 05:27 PM   #134
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Re: anyone decline the PKU?

how long is too long for them not to eat that becomes a problem??
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Old 02-21-2013, 06:09 PM   #135
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Re: anyone decline the PKU?

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how long is too long for them not to eat that becomes a problem??
depends on the condition and child. Like adults some can go hours without food and others feel shaky if they have nothing for a few hours.

I thought the guide for babies was not to let them go more than 4 hours, but that could be different for a sickly babe
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Old 02-22-2013, 09:16 AM   #136
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Re: anyone decline the PKU?

Oh I know what it is for reg. babes I was just wondering if it was less time for someone with FODS. seems even when my kids are sick that is when they nurse the most. I could see how it could be trickier with an older toddler.
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