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Old 07-29-2014, 11:57 AM   #1
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Help me put words/organize my thoughts- oral issues

DS turned 2 years old last week- and will have a well baby check in the next few days, but he has some issues I would like to bring up with his doctor (family doctor-not peditrician)... but am having a hard time organizing my thoughts and concerns and deciding what is important and what is normal- my doctor tends to be dismissive and a wait and see guy- so I want to be prepared going into this.

- he is just in the last few weeks starting to say words, he is not a shy kid that is just choosing not to talk. The words he does have he only ever uses the first or last syllable (ie sucker is- Ker, paci is- pa, outside is- dide)

- he is overly attached to his paci, ie- if you take it away he will cry, scream, etc.. until you give it back even if it is a couple hours.

- when he eats he shoves food in his mouth tell he can't swallow anymore, and I have to tell him to chew and swallow

- he won't eat anything that is hard and requires chewing. Ie- he will eat homemade unsweetened applesauce but won't eat an actual Apple, or any hard fruit or vegetable- or meat that isn't shredded or small enough to just swallow.

- he will gag or even throw up if you put anything in his mouth he doesn't want. Ie- even when he was a baby if you offered a bottle when he didn't want it he would gag instantly and sometimes throw up just by putting it up to his mouth.

- he throws up a lot, like 1-2 x a week, or more.

None of these issues seem like a big deal on there own, but together they are kind of starting to concern me, i am not even sure how or why- but it doesn't seem normal, am I crazy, over thinking it?? Or are these valid concerns at 2??

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Old 07-29-2014, 12:37 PM   #2
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I would definitely discuss this.... Hope your ped is receptive! *hugs*
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Old 07-29-2014, 12:43 PM   #3
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Re: Help me put words/organize my thoughts- oral issues

You can call early intervention for a referral yourself, you don't need your doctor to do it
I would think a SLP could help with those issues.
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Old 07-29-2014, 01:09 PM   #4
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Re: Help me put words/organize my thoughts- oral issues

Yup. Request an evaluation from early intervention. It sounds like some oral motor things maybe. A speech pathologist will be able to help. You can contact them yourself.
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Old 07-29-2014, 01:28 PM   #5
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Yes! An SLP will do therapy to help with his speech and oral issues. Call early intervention, you do that yourself. Don't wait! We waited until DS was 2 1/2 and I wish we would have started earlier. Other than the throwing up my son had all the issues your son does. He did speech and oral therapy. He still has oral issues (he is 5) but they are SO much better
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Old 07-29-2014, 01:45 PM   #6
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Re: Help me put words/organize my thoughts- oral issues

Trust your gut.
You are Mama, and your evaluation and instincts weigh far more than any doctor's thoughts on your child.
I was continually dismissed by friends, family, and our pediatricians with concerns for both my boys. Long story short, both my boys are on the Autism Spectrum. My oldest has a variety of other serious diagnosis, but it took me YEARS to get them diagnosed, YEARS for a doctor to take my concerns seriously and not until DCF started knocking on our door with accusations (DCF has now turned into a wonderful world of resources.) Help should NEVER be that hard to get. Be a Mama Bear if you must be!

Does your son make good and consistent eye contact?
Does he self harm? When upset or tired at all?
Does he do any sensory seeking behavior, apart from his binky love?

Like a previous poster said, EARLY INTERVENTION. It is only done until age 3. Find an EI center, or more than one!, to get proper evals done. If you don't think their evaluation or findings are consistent with what you see, request another one and/or request it elsewhere. We were jipped of EI because I was not persistent enough and I absolutely regret it now, my boys could have had a much bigger advantage if I pushed and pushed until I was heard.
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Old 07-29-2014, 03:34 PM   #7
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Re: Help me put words/organize my thoughts- oral issues

Call EI directly. I wouldn't trust a general ped to do developmental evals. Peds are great for referrals, specialist paperwork, check ups and sick appointments but a poor resource when a detailed developmental eval needs to be preformed.

I am thinking oral coordination problems and possibly low tone from your description so I agree an SLP is a good place to start if it turns out to be more sensory based then you can get OT involved. SLP will most likely be doing some of the testing such as a swallow study required for feeding therapy by most reputable places any ways. Depending on the results of the eval they may want a GI or ENT consult to make sure their isn't an underlying medical issue.
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Old 07-29-2014, 04:22 PM   #8
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Re: Help me put words/organize my thoughts- oral issues

Quote:
Originally Posted by GreenHome Sewing View Post

Does your son make good and consistent eye contact?
Does he self harm? When upset or tired at all?
Does he do any sensory seeking behavior, apart from his binky love?
.
He does make good eye contact most of the time unless I ask him to look at me, then he purposely closes his eyes or looks away, no self harming behavior that I have noticed, but he does itch himself a lot but only in his stomach- sometimes until it is raw. I have not noticed any other sensory seeking behavior.
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Old 07-29-2014, 04:27 PM   #9
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Re: Help me put words/organize my thoughts- oral issues

Quote:
Originally Posted by mekat View Post
Call EI directly. I wouldn't trust a general ped to do developmental evals. Peds are great for referrals, specialist paperwork, check ups and sick appointments but a poor resource when a detailed developmental eval needs to be preformed.

I am thinking oral coordination problems and possibly low tone from your description so I agree an SLP is a good place to start if it turns out to be more sensory based then you can get OT involved. SLP will most likely be doing some of the testing such as a swallow study required for feeding therapy by most reputable places any ways. Depending on the results of the eval they may want a GI or ENT consult to make sure their isn't an underlying medical issue.
The other issue that I didn't realize could be related is that he was diagnosed with asthma about 6 months ago- the asthma meds seem to help him in the sense that his cough hasn't developed into ant major infections like it used to but it hasn't helped in the sense that he still always has a consistent cough and is always raspy like something is caught in his throat (sounds constantly croupy)- he will cough tell he throws up quite often. It was brought to our attention recently that this could actually be a reflux issue and not asthma at all- at least something worth checking into. The cough and raspiness has been going on since he was 6 weeks old.
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Old 07-29-2014, 04:28 PM   #10
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Re: Help me put words/organize my thoughts- oral issues

Exactly what everyone else said..you can contact EI yourself for an evaluation. They kept pushing aside my concerns about my son LOOSING his speech at 13 months...it took a fill in pediatrician at 19 months to finally listen and send us where we needed to go but once they did we got in with someone quickly for testing and everything. .and once they "confirmed" he was on the spectrum we got all the help we needed quickly and its made a world of difference in him.
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