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Old 11-09-2006, 09:35 PM   #1
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Bad night. Scared for ds. Prayers/Positive Thoughts Please.

Adrian is almost 5 months. Niko is 17 months. Timmy is 2 months shy of 3 years.

I'm not sure if ppl know the story behind what is going on with Adrian, so I will start there.

I have the most horrible time trying to get Adrian to eat. It takes me an hour or more to get him to down a bottle sometimes (yes, I bottle feed ... please no flaming. There are definite reasons why). He has bad acid reflux and he gets cereal in his bottles (per doctor's orders), but still throws about 1/2 of it up after each feeding. I started him on cereal at 4months, and he screams through the whole thing. He just wants to suck on his fingers and does NOT want any food - bottle or solids. I spend most of my day and evening trying to get him to eat. Then the rest is spent cleaning up the puke and trying to soothe him. Yeah .. I know the other two are being put on the back burner and I feel horrible, but I dont know what to do for Adrian.
The doctor did start him on prilosec and reglan a while back. They helped a little, but not much.
I was getting worried about him not eating much. At first I kinda brushed it off and figured I was being paranoid. My other two were little hogs and wanted to eat all the time. I figured Adrian was NORMAL and that is what a normal baby ate. But then I kept feeling like he wasn't growing. So I scheduled an appt to see the ped because I was worried.
Good thing I did. In 2months he only gained 4ounces. The doctor was worried. He also found out that Adrian had an ear infection. So, I was instructed to come back today to get another weight check and an ear check.
We all went to the office, but Nick stayed out in the waiting room with Niko & Timmy while I took Adrian in.

He did gain a little more weight, but because he is 5 months now, he dropped even lower on the percentile scale. He is at 1%. The doctor is worried about it, but says that we will go for 1 more month and see if he can gain some more. If he doesn't, he will have to go to Children's hospital to a specialist to be evaluated. Then he was checking Adrian over and he felt his soft spot. Well Adrian's soft spot is almost completely closed. The soft area is only the size of the tip of a pencil eraser right now. The doc said that that is not good. It isn't suppose to close until much much later. He is worried that his skull will close and his brain will not have room to grow. So, when we come back in 1 month for a weight check, he will also measure the soft spot and if it has closed more, he will have to see a specialist for that as well. We're talking major problems possibly. Surgery vs brain damage.

Just after he was telling me that I hear Niko start screaming. It wasn't an "I'm a brat" scream, it was a "I'm in pain" scream. I just grabbed up Adrian and ran out the room and into the waiting room. NIck was yelling for someone to help him and I get there and there are doc's and nurses around Niko and NIck and I look over their shoulder and blood is gushing out of Niko's head. OMG .. I just got this horrible news about Adrian, and now Niko is bleeding everywhere. Well they took him back in one of the exam rooms and put cold compresses and gauze pads on it to try to stop the bleeding. Yeah.. head wounds bleed A LOT! Well the doc finally got a look at it (couldn't see it through allthe blood) and informed us that we'd have to go over to the ER.

Ugh .. so off we went there. I went in with Niko and told Nick to take Timmy out for dinner since it was already 6:30pm by then. So Nick took Adrian and Timmy and went to Burger King and I held my crying, bleeding baby in the ER. After sitting there FOREVER (and mind you there were NO patients in the ER), the doc came over and decided that he could glue it back together instead of using sutures. So now Niko is glued up.

I guess that Niko and Timmy were playing in the waiting room and they ran into each other and Niko fell back and slammed his head against the corner of the wall. He has a big goose egg, a bruise on his face and now a glued up spot too.

Umm.. needless to say, we will NOT be getting our family pictures done this weekend as planned.

Now that the excitement over the whole fiasco with Niko is over and he is all fine and tucked into bed the realization that there could be something very wrong with Adrian is on my mind. I'm so scared of what might be. It seems like there has been something or other wrong with Adrian since he was born. I love him so very very much and want him to be healthy ... and I'm so scared that we are facing some major major uphill battles with his health.
Hugs,
Cat

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Old 11-09-2006, 09:40 PM   #2
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Re: Bad night. Scared for ds. Prayers/Positive Thoughts Please.

Oh, Cat, hon (((((((((((((hugs))))))))))))) for you.
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Old 11-09-2006, 09:57 PM   #3
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Old 11-09-2006, 09:59 PM   #4
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Re: Bad night. Scared for ds. Prayers/Positive Thoughts Please.

How scary. All of it. I will keep your family in my prayers. Jackson's very tiny and has reflux, I can tell you, when they hit 6/7 months you're suppose to see a change. Jackson quit puking for about 4 days, now he's back to it, but I'm hoping it's a sign of what's to come.

Also, not sure if this would help you, but I noticed when I give Jackson cereal and babyfood, he does MUCH better keeping it down! He can even keep down a bottle a little later when he eats "food." Must be keeping it thicker in his tummy. He also started gaining more weight then too, since he wasn't throwing up as much.
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Old 11-09-2006, 10:11 PM   #5
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Re: Bad night. Scared for ds. Prayers/Positive Thoughts Please.

I have two boys (about the same ages as your 2 oldest boys) and I totally understand the frustraion of "boys being boys". Someone is always hurt at my house.

I'm hoping and praying everything works out with Adrian!!!!!
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Old 11-09-2006, 10:12 PM   #6
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Re: Bad night. Scared for ds. Prayers/Positive Thoughts Please.

I am so sorry!

I would advise you not to wait a month. Do you think you could see a specialist sooner?

I hope so!! Keeping you and your little ones in my thoughts!!
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Old 11-09-2006, 10:14 PM   #7
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Re: Bad night. Scared for ds. Prayers/Positive Thoughts Please.

Your family will be in my prayers
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Old 11-09-2006, 10:17 PM   #8
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Re: Bad night. Scared for ds. Prayers/Positive Thoughts Please.

I am so sorry u had a bad day!!!

I will tell you it is imporatnt to get Adrian checked out ifhe doenst gain. BUT i will also tell you my 3d child was big time FTT,( failure to thrive) by 2 months she was not even on the chart anymore, and she reamained an inch BELOW the chart until she turend 2.now she is less than 5%.
I had seen alot of docsfor her, and really they didntget too cincerneduntil she wasnt getting longer. She went about 8 weeks, without gaining an ounce or any legnth. She did not have reflux,that i know of. unless it wasslinent and she nursed often,but didnt eat much. My other 2 were pigs but had severe reflux.
I am telling you this for 2 reasons. one is, she wasn and still is, considered FTT. adns he is FINE.theotherreason is,research al differntthingsbeforeou go in.SOmekidsjust dont gain in a "normal"pattern, but will gainin THEIR normal pattern. Also, one thing i learned is doctors are just practicing.... LOL
Remember there have to be babies that wegh less and some that weigh more, in oder for there to be averages...
In other words, Take this seriously, but also liten to your gut. As far as the skull thing i have no idea but wil offer

Take care mama!!
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Old 11-09-2006, 10:30 PM   #9
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Old 11-09-2006, 10:45 PM   #10
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Re: Bad night. Scared for ds. Prayers/Positive Thoughts Please.

Big hugs mama!! Praying for you and Aidan.
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