More pee pee problems.... *Kinda* Update in post 27

[Jessie_Willie]

My heart really does go out to you! I cannot imagine going through that. I actually took him to the ER, and they tried to get a urine sample with one of the tee tee bags, and he never would tee tee. Then they cath'd him, but his bladder was empty. I've noticed if I give him 2 or 3 ounces of water one day a week, it doesn't happen. Weird...

[j+csmama]

UGH!!! I'm so frustrated with this!! We finally got the pathology reports... and guess what. Inconclusive!!!!! Gr.... So now the derm wants to do a second biopsy on a different body part (probably his inner forearm) to see if there's any more info there. She's leaning toward a skin fragility disorder but can't confirm her diagnosis until further testing. My poor boy....

[NCFlanagan]

mama - do his diapers smell strongly after he urinates in them? not just like urine, but like ammonia? my son had been getting sores/crusting/bloody spots/painful urination, and it's definitely from our diaper issues.

Just a shot in the dark (though, I'm sure you've tried everything by now!)